Living Life in the City
My second home is in BOSTON Massachusetts
heart transplant, inspirational story, organ transplant
I need to back up to Monday, one of Lauren's heart medications was changed. The medication that the transplant team gave to her after her heart shock was a new medication on the market. Very expensive, $500.00 for a months supply. My husband Dean and I told the dr.'s we will pay if this is what Lauren needs to be on. Well, she has been on that one and this Monday she started a different medication to lower her heart rate instead. We have been keeping a very close eye on her heart rate, she seemed to be doing fine until yesterday.
When our visiting nurse came, she checked Lauren's heart rate and it was staying around 125-130. We then called her transplant team in Boston to inform them. They were very concerned, and told us to go the emergency room so Lauren could have a EKG done and blood work. I became very scared, this is how the other episode started. We were told Lauren does not have anything in reserve with her heart, it's still not working at 100%. They informed us they were calling Baystate Hospital to tell them we were coming in, (so we didn't have to wait to be seen) and if they felt Lauren needed to be admitted she would have been transported to Boston to be admitted there.
We arrived at 4 p.m., took us right in, did the EKG. I was studying it like I knew what I was looking at. I don't, but I was looking for any straight lines between her beats. Then ultrasound was done and a chest ex-ray. They gave her fluids through an IV, they said she was a little dehydrated.
Lauren was also experiencing pain in her gallbladder area where the GT tube is placed. So we needed to wait for a surgeon to come and check her out. After all the test's were done, the surgeon told us everything looked good, Lauren must have tugged it at some point. Pain meds were given to her.
Heart rate returned to normal and Lauren was more comfortable. The ER dr's called Boston, and they felt she was safe to return home. So at 11:30p.m. we were given our walking papers finally.
You will never know how relieved we all were that we were not heading to Boston last night.
This morning Lauren woke up with pain from her site, so I have been giving her pain meds to help and she is just vegging in bed today. Our nurse Dee came to check on Lauren, but to tell you the truth I needed her more. When Dee walked into the house I said "can we talk first". I sat there and just cried and told her how scared I was. The memories from June are way to fresh in my mind. Dee sat there and listened, then gave me my pep talk so I'm ready to take care of Lauren now.
I know so so many people are concerned for Lauren. As Lauren's mother, that gives me the strength to keep fighting for her knowing I am not alone.
I hope this will answer any questions you may have on what happened yesterday. The day before we were at the Patriots game enjoying life, the next day in the hospital wondering what the hell is going on. You just never know, day from day.
I am not one to give advise but I am today " There is no such thing as tomorrow, it's just a word with no guarantee's we will see it". Just something to think about.