Living Life in the City
Anything is possible
heart transplant, inspirational story, organ transplant
March 14, 2018
We finally found out if Lauren will need to have to the PA line back in or was she approved to stay listed as a 1A without being leashed.
It wasn't until around 5 p.m. when the doctor came in. Trying to read his face was hard (good poker face). Lauren looked at him and said "So what was the decision"? Our doctor smiled and said "they ruled in your favor, you are extended for three months". I cannot even tell you the relief in the room, followed by "Thank You Lord". After the day we were having, the last thing we needed was bad news.
I asked "what happens after the three months?", Dr. Givertz looked at me and said "In three months, I expect Lauren to be home recovering from her heart and kidney surgery". Now that gave us the hope we needed to make it to another day.
I really do not know how I would be able to comfort Lauren if the news came back the other way. I was dreading it all day.
As I am sitting here writing this post, I look over at my daughter asleep in her bed, wondering what will our day be like today? I'm feeling frustrated and tired, ground hog day LOL, then in my mind I think of just small stuff that can make this a good day. Time to get creative, stay positive to make it a great day.
My sister Donna Jezouit, started a Go Fund Me Page. I wasn't jumping right at the idea at first, but after a long talk and deep thoughts I agreed. Yes living here is very expensive, also when Lauren does receive her new heart and kidney, there are going to be much more expenses following. We will be introduced to Kidney medications that we never had been on before on top of the the twenty something heart medications. Also, the constant visits back to Boston for the frequent biopsies and appointments with the doctors for each organ. Oh Boy, talk about having a pharmacy at the house.
If you would like to read the story please click on the link below