Living Life in the City
Anything is possible
heart transplant, inspirational story, organ transplant
How Long Will I Have to Wait?
I remember when they placed my daughter Lauren on the list, of course we asked that question "How long do you think we will have to wait'? Our doctors favor quote was "this is not a sprint it's a marathon"
As I would sit and wait everyday I would say maybe today. It was a marathon. Lauren was listed March 13, 2013. She received her new heart on December 29, 2013.
Lauren was listed as a 1A, the total time of wait. We live in Massachusetts, we were told where we live makes a difference. Some regions have a longer wait time. Well, our's was one of them. So many safety laws, we were told. At one point we considered moving to a different region, we heard people have done that. After much consideration and quality of life during our wait we decided we were staying and not leaving loved ones.
Below is from the CTDN, it guess they give out beepers in California, we didn't have one here. Hope this helps answer some questions.
Much Love to everyone waiting for an Organ transplant
you can read about our journey on the transplant list from my book
Strength in a Heartbeat, Diary of a Heart Transplant
click on the book
After the decision for transplantation is made, your name will be added to the United Network for Organ Sharing (UNOS) and California Transplant Donor Network (CTDN) waiting lists and you will receive a beeper for emergency contact when a heart becomes available. We cannot predict exactly how long you will have to remain on the UNOS waiting list, but an average wait is between six months to three years because of the shortage of donor organs.
If you are classified as a "Status One" on the waiting list, your situation is relatively grave. One of the following must be true:
If you are classified as a "Status Two," your condition is relatively stable. You may have to wait for months or years to have your transplant. If your condition worsens, you may be placed on the Status One list.