Anything is possible
heart transplant, inspirational story, organ transplant, motivational story, kidney transplant
Happy Halloween to everyone
time to make some memories
Today, make it a great day!!!
I remember when my kids were small, my husband Dean and I dressed up to pick the kids up from the bus stop. Dean wore a total black gown, the grim reaper and I wore my hair rolled up in a towel, bathrobe and slippers. When the bus pulled up, our kids were so embarrassed. It was great.
To this day, they still talk about it. Today is a day to dress anyway you want and really no one cares. So go for it, have fun and make some memories.
New subject, the Hemingweigh Himalayan Salt Rock.
So much talk about it. I've heard all the benefits this salt rock will deliver in your home, they sounded great to me so I bought one. Below is one of the benefits of this amazing salt rock.
Salt Lamps Cleanse & Deodorize the AirProbably the most well-known benefit – and why the majority of people use them – is due to their incredible power to remove dust, pollen, cigarette smoke, and other contaminants from the air.
Himalayan salt lamps purify air through the power of hygroscopy, meaning that they attract water molecules from the surrounding environment then absorb those molecules – as well as any foreign particles they may be carrying – into the salt crystal. As the HPS lamp warms up from the heat produced by the light bulb inside, that same water then evaporates back into the air and the trapped particles of dust, pollen, smoke, etc remain locked in the salt.
I am not convinced of all the magical power's of this Salt Rock, but I will say I love mine. When turned on, the orange light brings a soft warm lighting to my living room. It has a dimmer to I can adjust the amount of light I like. I recommend the Salt Rock below, that's the one I bought. If you want a comfortable low lighting, go for it. If it is purifying my air, it's a win win.
With the cold weather coming, feeling cozy is what we all want to feel. This light will give you a nice, cozy warm lighting for any room in your house.
Life with an LVAD. Boy, do I remember when my daughter had her LVAD. At the time Lauren was on the heart transplant list living in the hospital. She became very sick, her heart functions were failing fast. We were told about the LVAD at the beginning when she first was listed that it could be a possibility she may need one, they call it a bridge to transplant.
What is an LVAD?
At the core of the HeartWare® System is a pumping device called a left ventricular assist device (LVAD). The LVAD sits inside your chest and is connected directly to your heart. It pumps blood from the left side of your heart into your aorta (large blood vessel that carries blood from your heart to the rest of your body). The blood exits the pump in a continuous stream much like water out of a garden hose. Note that this continuous flow of blood is different than the pulsing beat of a normal heart, and as a result you may not be able to feel your pulse. There is no need for concern, this is completely normal.
That was in June of 2013. During that time, I could not believe their was a mini machine inside Lauren's heart pumping the blood for her. If you listened to her chest you could hear a slight humming for the LVAD.
Before we came home, we had our electrician come to put an outlet in her room that was on it's own breaker, just to be on the safe side. To be honest I treated Lauren like a new born baby. So afraid of everything. We had all the proper training on the device but, that's my child living with a machine and battery packs. It is very scary. We lived through it and Lauren has received her heart on December 29, 2013.
I wrote this post for one reason, you can live with a LVAD. You will get over the fear of the machine. This device saved my daughter's life.
This picture was taken when Lauren and I came home from the hospital after she had her LVAD surgery.
I personally know how scary it is to live with a LVAD, but it did allow us to come home to wait for Lauren's new heart.
Like the saying
THERE'S NO PLACE LIKE HOME
I WAS A CAREGIVER OF A PAITENT OF AN LVAD
IF WE GOT THROUGH IT, YOU CAN
We need to smile again !!
Friday, June 7, 2013
Here we are at day 93, living in the hospital. The only way I can express how we feel right now is we are playing BINGO for the cover all and we are just waiting for one number before we can yell "BINGO!" Anxious, happy, nervous, just waiting. Well, that's how we feel. We are just waiting for our number to come. We want to yell "BINGO" when they come into our room and say her heart is here.
Lauren is getting weaker and very tired. I can see it in her eyes, she's scared. I cannot take seeing my daughter slipping away from me. All I can do is sit with her, hold her hand and tell her "I'm sending you strength." Lord please help me daughter I can't lose her.
So many people die waiting on the transplant list; national figures say 23 people a day. My gut is telling me are running out of time. Please Dear Lord, give my daughter her second chance at life. I find myself going to the hospital chapel more frequently. I cannot have Lauren see me losing it.
Please pray for my child
In constructing my book, it is formatted in journal form. It takes you from the day we were admitted when Lauren was in heart failure to the day we walked out of the hospital together.
I wrote this book to help other's, just when you think you cannot hang in there any more, their is hope. I belong to quite a few groups, listening to so many people that are on the list, wondering when they will get the call, brings so many memories. All I can say is "keep the faith, your call will come", you need to believe. When you feel you can't go on, please please talk to someone, so important.
Some times talking to a stranger that lived it, can help. I am here
my email is email@example.com
If you would like to read more on our story our book is Strength in a Heartbeat, Diary of a Heart Transplant. On the top os this page is a link to the book. I published it to help other's know they are not alone in this journey.
Sending love Lynne
How Long Will I Have to Wait?
I remember when they placed my daughter Lauren on the list, of course we asked that question "How long do you think we will have to wait'? Our doctors favor quote was "this is not a sprint it's a marathon"
As I would sit and wait everyday I would say maybe today. It was a marathon. Lauren was listed March 13, 2013. She received her new heart on December 29, 2013.
Lauren was listed as a 1A, the total time of wait. We live in Massachusetts, we were told where we live makes a difference. Some regions have a longer wait time. Well, our's was one of them. So many safety laws, we were told. At one point we considered moving to a different region, we heard people have done that. After much consideration and quality of life during our wait we decided we were staying and not leaving loved ones.
Below is from the CTDN, it guess they give out beepers in California, we didn't have one here. Hope this helps answer some questions.
Much Love to everyone waiting for an Organ transplant
you can read about our journey on the transplant list from my book
Strength in a Heartbeat, Diary of a Heart Transplant
click on the book
After the decision for transplantation is made, your name will be added to the United Network for Organ Sharing (UNOS) and California Transplant Donor Network (CTDN) waiting lists and you will receive a beeper for emergency contact when a heart becomes available. We cannot predict exactly how long you will have to remain on the UNOS waiting list, but an average wait is between six months to three years because of the shortage of donor organs.
If you are classified as a "Status One" on the waiting list, your situation is relatively grave. One of the following must be true:
If you are classified as a "Status Two," your condition is relatively stable. You may have to wait for months or years to have your transplant. If your condition worsens, you may be placed on the Status One list.
Some helpful information on organ transplant placement. More than 120,000 people in the U.S. are waiting to receive a life-giving organ transplant. We simply don't have enough donated organs to transplant everyone in need, so we balance factors of: Many factors used to match organs with patients in need are the same for all organs, but the system must accommodate some unique differences for each organ.
The First StepBefore an organ is allocated, all transplant candidates on the waiting list that are incompatible with the donor because of blood type, height, weight and other medical factors are automatically screened from any potential matches. Then, the computer application determines the order that the other candidates will receive offers, according to national policies.
Geography Plays a PartThere are 58 local donor service areas and 11 regions that are used for U.S. organ allocation. Hearts and lungs have less time to be transplanted, so we use a radius from the donor hospital instead of regions when allocating those organs.
The Right-Sized OrganProper organ size is critical to a successful transplant, which means that children often respond better to child-sized organs. Although pediatric candidates have their own unique scoring system, children essentially are first in line for other children's organs.
Factors in Organ AllocationBlood type and other medical factors weigh into the allocation of every donated organ, but, other factors are unique to each organ-type.
COMMON MAXIMUM ORGAN PRESERVATION TIMES
Waiting list candidates as of today 10:20amAll 116,630
* information provided by UNOS Lynne
Strength in a Heartbeat, Diary of a Heart Transplant
Read our personal journey on the heart transplant list