Anything is possible
heart transplant, inspirational story, organ transplant
Living in the hospital for this long does not get any easier. Way back in January, when we checked in for this journey, I knew it was going to be a long haul, but living it now seems to become unbearable now and then.
Thinking back, the last five years, we have lived in Boston more than we lived in Chicopee Ma. I have tried clicking my heels and and saying "there's no place like home" but keep waking up here in Brigham's hospital. I guess I should be saying "there's no place like my other home in Chicopee", maybe that would work.
Everyday I take a walk, I call it my "suburbia". Time to think, clear my mind and find the strength to handle the day ahead.
This is my starting point. Love to seeing the trees and the flowers in bloom. Living in the city you, don't see this everywhere. Waiting for the lilic trees to bloom so I can pick some for Lauren.
These pictures I took on my walk this morning. It basically consist of a circle I created which is about a mile long. I try not to venture to far from the hospital, so I keep it to the same route I created. It's funny no matter how many people I walk by and say "good morning" they just walk right by you as if I don't exist. Great way to start your day. Believe it or not but the homeless people will say "good morning" without asking for anything, which puts a smile on my face. Looks like a nice quite walk, NOT. No matter how long I stay in the city, I will never get used to the lifestyle. Give me my quite street on Raylo any day.
The days are getting harder and harder. I am so tired of being tired. People stop and ask "How are you today"? With a smile I say "OK, another day in paradise". What I really want to say is "Are you really asking me that, how the hell do you think I feel"? I hate this place, hate living here, tired of people coming in and out of the room all the time. This is not living, this is existing.
Now don't get me wrong, the nurses and the doctors are fantastic here. Very caring and genuinely concerned about our well being. They can see how we struggle from day to day, trying to be upbeat and positive. We have a great support system here.
Today is Friday, which means my husband Dean is coming up after work. Every weekend Dean drives up on Friday and leaves on Sunday. It's a hard life for himself also. See my husband is used to me being there taking care of the house and yard and Kooper our puppy. Now it's all on him to do. We are very blessed to have great family and friends who help out at the house and with Kooper.
I would like to add, also during this time my mother has not been feeling well. My sister Lauren who came up here for a month, needed to fly home to care for my mother. My mom has been having problems with her legs, mainly circulation. So to be on the safe side, Lauren is living with her to help with her and make sure she is safe. I would love to fly to Florida for just a couple of days just to see my mom. But at this point it is not realistic. If I had a magic globe that would tell me Lauren will be ok for a couple of days I would be there. Sometimes during these times you just need a mom hug, and I am sure she could use a Lynne hug.
I am working on a new project. So many people have told me that my book
"Strength in a Heartbeat, Diary of a Heart Transplant" should be in nursing colleges. They have said it gives great insight on the patients and family prospective on living in the hospital for months on end. The other part of nursing, not the medical, the empathy of a patient. If anyone knows anybody that I can connect with, please let me know. Currently it is being presented to Boston University, to be reviewed. I wrote and published it to help others going through the transplant experience, never thought it could be a learning tool for the medical community.
Available in paperback form or on Kindle
***** This is a story of incredible inspiration. What this family endured and survived IS the definition of STRENGH. I sobbed when I read this book as all kinds of emotions came over me when I read it. Congratulations to this amazing family for winning the fight! It shows how powerful love, faith and family truly are. Also depicts the realities of "living' in the healthcare system. Thank you Lynne for sharing this incredible and personal story with the rest of the world
From the Author
This book is dedicated to the angle who decided to become an organ donor. You saved my daughter's life.
If you know someone going through the same process, please share this book, or if you would like to know the truth about a heart transplant, pick up your copy today. On a side note, there is a gentleman here in the hospital who was having a hard time living here. He went home twice, couldn't take the life style. I gave him a copy of my book, he read it. Came back to the hospital and said "After I read your book, I now feel like I can suck it up and begin the process I started". He and his wife thanked me for sharing our story. So to this day he is still here in the hospital waiting for his heart transplant.
Living with Lauren in the hospital, I am never surprised what she will do. Let me introduce you to Oliver, Lauren's friend. He has come a couple of times to visit. So today she decided she wanted to take him for a walk. Day 108 living in the hospital, and she is still smiling.
Strength in a Heartbeat, Diary of a Heart Transplant
Read our personal journey on the heart transplant list