Anything is possible
heart transplant, inspirational story, organ transplant, motivational story, kidney transplant
Ever wonder what it is like to get "THE CALL, THE NEWS", you have been praying and praying for?
Watch the video of Lauren receiving her news.
One year ago today, after 123 days of living in the hospital, our prayers were answered. Lauren will be receiving her new heart and a kidney.
Click on link to see how we received this beautiful news
The Night Lauren Received the News Family
This picture of my son Michael that evening says it all.
I remember when we took this picture. Lauren and I took a walk that evening, then sat on the window ledge in the stairway. We had the conversation no parent ever wants to have with their child. It was on both our minds, the what if.........
Some people may say, why would you? Lauren and I have been through so much together, good and bad it needed to be spoken out loud. After our conversation, we both felt, I still remember a little more at piece with everything. I knew what my daughter's wishes were.
We then said to each other, "let's do this transplant, then go HOME TOGETHER"
For everyone that is presently waiting for your Gift of Life, stay strong, your day is coming. Miracles do happen.
Because a special person that made the decision to become an ORGAN DONOR, I am at home with my daughter today.
If you are not a registered Organ Donor Please reconsider your decision,
Go to www.donatelife.net to learn more.
City of Chicopee celebrates organ donation, declares April as Donate Life Month
Click on link to see video
CHICOPEE, Mass (WWLP) - The mayor of Chicopee joined New England Donor Services at City Hall Monday morning to celebrate how the lives that organ donation has saved.
According to City of Chicopee Spokesperson Nathan Moreau, Mayor Richard Kos was joined by New England Donor Services and other officials to proclaim the month of April to be Donate Life Month in Chicopee.
Also in attendance were individuals whose lives were personally impacted by organ donation including Lauren Meizo who received a heart transplant and Scott and Kim Meyer, a married couple who met while waiting for organ transplants.
"Sitting in the hospital the last year waiting for my second heart transplant and my first kidney, I never would have thought a year ago today, I'd be outside raising the flag," Meizo said. "It's an honor to be chosen to raise the flag."
Moreau said 99 percent of Massachusetts residents are registered as organ and tissue donors.
Meizo became something of an internet sensation one year ago, when New England Patriots player Rob Gronkowski paid a surprise visit to his number one fan in a Boston Hospital, where she was waiting for an organ donor.
Heart transplant recipient Kevin LeBeau of Chicopee treasures the picture of the young man whose donated heart now beats in LeBeau chest and has since 2015.
"Without this man right here frankly, I would never even have been here today," LeBeau. "He's Frankie from Rayland, Ohio. He's my hero and his son who just turned five, always reminds me he's a year younger than me."
In 2018 over 1159 lives were saved in New England because of organ donors and thousands of lives were enhanced because of tissue donation.
New England donor services hope everyone registers as an organ donor through the registry of motor vehicles. You can have it right on your driver's license. Mayor Kos proudly displayed his registration as an organ donor.
Donate Life month in Chicopee is an opportunity to educate communities on the importance of organ donation, according to Moreau, as over 113,600 patients across the country are on the transplant wait list.
Did I mention how proud I am of my daughter.......
For an organ transplant recipient, this is only the morning dose needed to keep your new organ healthy and your body from rejecting. Please continue to read this post, it could save your life or a loved ones life.
My name is Lynne Robitaille. My daughter received her first heart transplant in December of 2013. Unfortunately Lauren became sick again which affected her kidneys as well as her new heart. Eventually, Lauren was blessed and received her second heart and kidney in May of 2018.
Lauren is 28 years old and has lived a life I would never have dreamt. The past six years has basically been living in and out of the hospital. Months and months of hospital living waiting for her gift of life and then recovering was never easy. But she is a fighter and never gave up. She has way to much to live for.
This post is being written to help bring awareness in the importance of taking your medication every day as scheduled.
An Organ Transplant is NOT a Cure, it's a New Lifestyle.
Resonantly I have heard of two transplant recipients who has died due to NOT taking their medications. Yup, they stopped taking their rejection medications because it has been years since their transplants, and we're feeling great.
My heart broke when I heard this news. Yes people do stop taking meds when they start feeling better, but it must be done under a doctors recommendations.
An organ transplant recipient, can NEVER NEVER NEVER stop your rejections meds. You will be on them for the rest of your life. One patient was a lung transplant recipient who stopped taking the medication because she was feeling great. By the time she was admitted into the hospital, unfortunately it was to late. She was in total rejection and their was nothing that could repair her lungs, and eventually died. She could not be placed back on the list, for reasons not complying with her transplant team.
I felt the need to share this. Personally myself, I can say I am always checking with my daughter "Did you take your pills" is something I probably say to her once a day.
So the moral of this post is
NEVER STOP TAKING YOUR REJECTION MEDICATION, IF YOU ARE FEELING GREAT THE MEDICATION IS WORKING........
Please the word....
As I mentioned yesterday, we were going to get Lauren's biopsy results late yesterday afternoon. It was around 5:30 when the hospital called. Lauren said to me "mom Boston is on the phone". Lauren put it on speaker so we all could hear the news.
Lauren is still in AMR rejection....... I try to study as much as I can about different rejects, but we found out yesterday Lauren is in AMR1. Last biopsy she was in AMR2. I wasn't aware there were two types of AMR. AMR1 is better than AMR2, so our thoughts and the doctors it's not getting worse, moving towards the right direction.
On Wednesdays, the transplant team meets for their big meeting, so we were told they were going to discuss Lauren's case. We were also told that they need to wait for the results from UCLA about the special blood test that was flown out to them. The need to identify what the antibodies are that are putting Lauren into rejection.
So with all this said, it was good and bad news. Just need to stay positive, and move forward with life.
Thank you everyone for your prayers and concerns.
Love Lynne & Lauren
"After 2 months of living with antibody mediated rejection & taking oral chemo meds.. it's time to find out if this ticker still has 'rejection' or not and what the next step is"!
Today is the waiting game day. Yesterday Lauren and I went to Brigham & Women's Hospital in Boston Ma. for her heart biopsy, clinic appointment and echo.
My daughter Lauren, had her heart and kidney transplant on May 17, 2018
During the biopsies, they take a tiny piece of the heart muscle and look for signs of inflammation or rejection. This is the only way doctors can tell early on if your body is rejecting your donor heart.
After you have a biopsy, you will receive your results 24 hours later. You always pray for no rejection, but there are times when that is not the results you receive. Lauren's biopsy have all came back a 0, no rejection until last October . There are different stages of rejection. Lauren's came back as an AMR, antibody-mediated rejection. First time with a AMR rejection. After everything we went through over the past 5 years, I thought we knew mostly everything about transplantation and rejection. Totally wrong. I know as much as I needed to know, we never heard of AMR. So it was back to studying. I wanted to share some of the information I found. Treatment right now is adding a medication called METHOTREXATE.
***Methotrexate tablets are used alone or together with other medicines to treat several types of cancer such as breast, head and neck, lung, blood, bone, lymph node, uterus cancers, and severe rheumatoid arthritis.
****Methotrexate oral solution is used to treat acute lymphoblastic leukemia (ALL) in children, and help manage polyarticular juvenile idiopathic arthritis (pJIA) in children who had other treatments that did not work well.
*****Methotrexate belongs to the group of medicines known as antineoplastics (cancer medicines). It blocks an enzyme that is needed by cells to live. This interferes with the growth of cancer cells, which are eventually destroyed by the body.
Below is a grading of biopsy rejections:
**Grading rejection The pathologist, the medical Doctor who reviews the tissue slide for the diagnosis of rejection rates the presence and severity of rejection based in the International Society and Heart Transplant scale.
Antibody-mediated rejection (AMR)
Rejection refers to the organ recipient's immune system recognizing a transplanted organ as foreign and mounting a response to it via cellular and/or humoral (antibody-mediated) mechanisms. Routine endomyocardial biopsy remains the criterion standard for monitoring for such rejection. This process involves sampling of the right ventricle using a bioptome, and a pathologist evaluating the tissue. The concept of rejection is not unique to cardiac allograft transplantation and, to a varying extent, occurs in all forms of solid organ transplantation
Cardiac transplant rejection manifests in 1 or more of the following 3 ways: acute cell-mediated rejection, antibody-mediated rejection (AMR), and allograft vasculopathy.
Since Lauren has been showing AMR rejection, the doctors have scheduled a special blood test that will be done during the biopsy. The tube for this blood test needs to be personally handed to the doctor in the procedure room. It will then be flown to UCLA for examination. There are only a few institutions in the country that preforms this special test. This test was ordered by Lauren's kidney transplant team.
If we receive the news today that Lauren is still in AMR rejection, the team of doctors will discuss Lauren's case Wednesday during their transplant team meeting to put together a plan. They have mentioned the next step could be Plasmapheresis, which would be a hospital stay, possibly a week.
What is plasmapheresis? Centrifugation spins the blood for plasmapheresis.Pheresis, or apheresis, describes any process that removes the blood, filters and retains elements of it, then returns the blood to the body. Platelets, red blood cells, white blood cells, or plasma may be separated.
The procedure is performed using a machine that removes small amounts of blood at a time.
There are two ways to separate the components of blood:
So much information.......
We will probably hear back from the doctor's later this afternoon with results. Pray, pray, pray for
Strength in a Heartbeat, Diary of a Heart Transplant
Read our personal journey on the heart transplant list